Tripp Roth, a two-year-old baby born with a rare and immensely painful skin disease known as E.B., died on Saturday in his mother's arms.
Roth, from Ponchatoula, Louisiana, suffered from junctional epidermolysis bullosa or EB, a rare skin disease that currently has no cure. EB results from a lack of proteins that bond skin layers, resulting in painful blisters and massive bleeding of the skin.
When Tripp Roth was first diagnosed with the disorder shortly after birth, doctors said he wouldn't live past a year, as there is no cure. However, after two years of struggling with the painful condition which caused him to go blind, Roth died a few months short of his third birthday.
Following his death, Tripp's mother, 26-year-old Courtney Roth, blogged about the passing of her baby son from the disease.
It happened within minutes of me picking him up out of bed and rocking him. He took his last peaceful breaths in my arms, in his most favorite spot.
Roth has captured the attention of people worldwide with her blog detailing the care of Tripp and the Facebook page, which has garnered countless followers since it was created. Back in September, Tripp Roth's aunt created a video (below) to spread awareness of Tripp and EB.
You and your little boy made such an impact on so many. May you find comfort in the fact that he is pain free... one Facebook user wrote.
News of the death has sparked many supporters to mourn the loss of Tripp Roth from the rare and painful skin disorder.
According to her blog, Courtney Roth took time off of her job to care for her son, who needed to be washed with powerful sedatives and was forced to eat from a feeding tube. He was blinded by the disease and had to be wrapped in blankets constantly to protect his skin.
I have never been sad around him, and I try not to cry around him. We've made it to where he is in the happiest environment possible, she wrote. His spirit and personality are what keep me going.
One in 50,000 children is diagnosed with EB at birth while one percent of these cases are junctional EB. Children born with the condition suffer from blisters and sores all over the body, mostly on the face and eyes, just from a simple touch. The lack of proteins to hold skin layers together causes any sensation of touch to result in painful friction and blisters.
The funeral for Tripp Roth will be held Wednesday at St. Joseph's Catholic Church in Ponchatoula, Louisiana.