While most babies his age are fearlessly scampering about, learning to walk, talk, getting hugged and kissed by their parents, 2-year-old Tripp Roth can’t bear even a single touch.
Tripp, from Ponchatoula, La., suffers from junctional epidermolysis bullosa, an unbearable skin disorder that causes his skin to blister and scar at the lightest of touches, reports the Daily Mail. This extremely painful condition has restricted him to a life inside a bandaged cocoon. One of his supporters calls this as the worst disease you have never heard of.
The skin disorder has already affected his speech and sight, and Tripp cannot even bathe without taking powerful sedatives.
Doctors have suggested his mother to keep him wrapped in bandages to protect his delicate skin, since there is no cure.
But the toddler, who has blisters on his face and hands, has not been outside for a year and has survived all medical predictions.
He certainly astounded his doctors, his mother Courtney Roth, 26, told ABC News.
He is just amazing. I have always said that from the beginning. I have never been sad around him and I try not to cry around him. We've made it to where he is in the happiest environment possible. His spirit and personality are what keep me going, she added.
Tripp's skin is missing a protein that joins one layer of the skin to another, leaving it as delicate as a butterfly's.
Even a slightest touch can cause sores and scars across his skin, eyelids and inside his mouth.
‘I have never been sad around him and I try not to cry around him. We've made it to where he is in the happiest environment possible. His spirit and personality are what keep me going,’ Roth said.
When Tripp was born he was “absolutely gorgeous,” with just a small blister on his head and few on his back and doctors immediately diagnosed him with epidermolysis bullosa. But Roth at that time had no idea what that disease meant.
Tripp had also struggled with breastfeeding because of the sores in his mouth and ultimately needed a feeding tube, ABC News reported.
Roth, who was a nurse until Tripp was born, said the bath time was particularly painful for him.